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National Cancer Data Base - Data Dictionary PUF 2016

TREATMENT

Palliative Care at This Facility

DD_category: 
PUF Data Item Name: 
PALLIATIVE_CARE_HOSP
NAACCR Item #: 
3280
length: 
1
Allowable values: 
0-7, 9
Description: 
Identifies any care provided in an effort to palliate or alleviate symptoms at the reporting facility. Palliative care is performed to relieve symptoms and may include surgery, radiation therapy, systemic therapy (chemotherapy, hormone therapy, or other systemic drugs), and/or other pain management therapy. This data item was added to the 2015 PUF (data released in Fall 2017), and does not appear in prior versions of the PUF data.
Registry Coding Instructions: 
  • Record only the type of palliative care at this facility.
  • Surgical procedures, radiation therapy, or systemic therapy provided to prolong the patient's life by controlling symptoms, to alleviate pain, or to make the patient comfortable should be coded palliative care and as first course therapy if that procedure removes or modifies either primary or metastatic malignant tissue.
  • Palliative care is not used to diagnose or stage the primary tumor.
Analytic Note: 

This data item can be used to distinguish a treatment modality given for curative treatment from the same modality being used strictly for palliation. This item was added to FORDS in 2003.

If patients are admitted to a hospital for palliative care other than surgery, radiation or systemic treatment, the record often does not indicate the underlying reason for the procedure (for example, other forms of pain care). Therefore, when the initial care was elsewhere and the care was not one of these three modalities, it is unlikely the care will be reported in this data item.

This item identifies palliative care given at the reporting facility. The item Palliative Care identifies palliative care given by any facility.

Other Treatment at This Facility

DD_category: 
PUF Data Item Name: 
RX_HOSP_OTHER
NAACCR Item #: 
730
length: 
1
Allowable values: 
0-3, 6-9
Description: 
Identifies other treatment given at the reporting facility that cannot be defined as surgery, radiation, or systemic therapy.
Registry Coding Instructions: 
  • In order to report the hematopoiectic cases in which the patient received supportive care, SSER and the Commissison on Cancer have agreed to record treatments such as phlebotomy, transfusion, or aspirin as "Other Treatment" Code 1 for certain hematopoietic diseases ONLY. Consult http://seer.cancer.gov/tools/seerrx/ for instructions for coding care of specific hematopoietic neoplasms in this item.
  • Code 1 for embolization using alcohol as an embolizing agent.
  • Code 1 for embolization to a site other than the liver where the embolizing agent is unknown.
  • Code 1 for PUFA (psoralen and long-wave ultraviolet radiation).
  • Do not code pre-surgical embolization given to shrink the tumor.
  • Code 8 if it is known that a physician recommended treatment coded as Other Treatment, and no further documentation is available yet to confirm its administration.
  • Code 8 to indicate referral to a specialist for Other Treatment; the registry should follow. If follow-up with the specialist or facility determines the patient was never there, code 0.
Analytic Note: 

This item is available only for diagnosis years 2003 and later.

CoC cancer programs are required to identify treatment their patients received from all sources. Other treatment may have been given by any facility, or multiple facilities, not limited to the one whose report is included in this file. This refers to the first use of other treatment for the cancer by the reporting facility.

Treatment Status

DD_category: 
PUF Data Item Name: 
RX_SUMM_TREATMENT_STATUS
NAACCR Item #: 
1285
length: 
1
Allowable values: 
0-2, 9
Description: 
This item summarizes whether the patient received any treatment or was under active surveillance.
Registry Coding Instructions: 

Treatment after a period of active surveillance is considered subsequent treatment and is not coded in this item.

Use code 0 when treatment is refused or the physician decides not to treat for any reason such as the presence of comorbidities.

Analytic Note: 

This item is only reported for diagnosis years 2010 and later.

Code Definition
0 No treatment given
1 Treatment given
2 Active surveillance (watchful waiting)
9 Unknown if treatment given


Palliative Care

DD_category: 
PUF Data Item Name: 
PALLIATIVE_CARE
NAACCR Item #: 
3270
length: 
1
Allowable values: 
0-7, 9
Description: 
Identifies any care provided in an effort to palliate or alleviate symptoms. Palliative care is performed to relieve symptoms and may include surgery, radiation therapy, systemic therapy (chemotherapy, hormone therapy, or other systemic drugs), and/or other pain management therapy.
Registry Coding Instructions: 
  • Surgical procedures, radiation therapy, or systemic therapy provided to prolong the patient's life by controlling symptoms, to alleviate pain, or to make the patient comfortable should be coded palliative care and as first course therapy if that procedure removes or modifies either primary or metastatic malignant tissue.
  • Palliative care is not used to diagnose or stage the primary tumor.
Analytic Note: 

This data item can be used to distinguish a treatment modality given for curative treatment from the same modality being used strictly for palliation. This item was added to FORDS in 2003.

If patients are admitted to a hospital for palliative care other than surgery, radiation or systemic treatment, the record often does not indicate the underlying reason for the procedure (for example, other forms of pain care). Therefore, when the initial care was elsewhere and the care was not one of these three modalities, it is unlikely the care will be reported in this data item.

Other Treatment

DD_category: 
PUF Data Item Name: 
RX_SUMM_OTHER
NAACCR Item #: 
1410
length: 
1
Allowable values: 
0 – 3, 6 – 9
Description: 
Identifies other treatment that cannot be defined as surgery, radiation, or systemic therapy according to the defined data items in this manual.
Registry Coding Instructions: 
  • In order to report the hematopoiectic cases in which the patient received supportive care, SSER and the Commissison on Cancer have agreed to record treatments such as phlebotomy, transfusion, or aspirin as "Other Treatment" Code 1 for certain hematopoietic diseases ONLY. Consult http://seer.cancer.gov/tools/seerrx/ for instructions for coding care of specific hematopoietic neoplasms in this item.
  • Code 1 for embolization using alcohol as an embolizing agent.
  • Code 1 for embolization to a site other than the liver where the embolizing agent is unknown.
  • Code 1 for PUFA (psoralen and long-wave ultraviolet radiation).
  • Do not code pre-surgical embolization given to shrink the tumor.
  • Code 8 if it is known that a physician recommended treatment coded as Other Treatment, and no further documentation is available yet to confirm its administration.
  • Code 8 to indicate referral to a specialist for Other Treatment; the registry should follow. If follow-up with the specialist or facility determines the patient was never there, code 0.
Analytic Note: 

CoC cancer programs are required to identify treatment their patients received from all sources. Other treatment may have been given by any facility, or multiple facilities, not limited to the one whose report is included in this file. This refers to the first use of other treatment for the cancer by any facility.

Other Treatment, Days from Dx

DD_category: 
PUF Data Item Name: 
DX_OTHER_STARTED_DAYS
length: 
4
Allowable values: 
0 – 9999
Description: 
The number of days between the date of diagnosis (NAACCR Item #390) and the date on which Other Treatment at any facility was started (NAACCR Item #1250).
Registry Coding Instructions: 

None.

Analytic Note: 

CoC cancer programs are required to identify treatment their patients received from all sources. This treatment may have been given by any facility, or multiple facilities, not limited to the one whose report is included in this file. This refers to the first given for the cancer by any facility.

Code Definition
0 - 9999 Number of Elapsed Days
Blank Other therapy not administered, other therapy unknown, or cannot compute elapsed days due to missing or incomplete dates


Treatment Started, Days from Dx

DD_category: 
PUF Data Item Name: 
DX_RX_STARTED_DAYS
length: 
4
Allowable values: 
0 – 9999
Description: 
The number of days between the date of diagnosis (NAACCR Item #390) and the date on which treatment [surgery, radiation, systemic, or other therapy] (NAACCR Item #1270) of the patient began at any facility.
Registry Coding Instructions: 

None.

Analytic Note: 

Any type of surgery, including diagnostic surgery procedures, are automatically coded as Treatment for this variable. Surgery codes should be reviewed for patients who received surgery before any other treatment to determine if the surgery was for treatment.

Code Definition
0 - 9999 Number of Elapsed Days
Blank No first course therapy administered, first course therapy unknown, or cannot compute days elapsed due to missing or incomplete dates


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