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National Cancer Data Base - Data Dictionary PUF 2016

PATIENT DEMOGRAPHICS

Primary Payer

DD_category: 
PUF Data Item Name: 
INSURANCE_STATUS
NAACCR Item #: 
630
length: 
1
Allowable values: 
0 – 9
Description: 
Identifies the patient's primary insurance carrier at the time of initial diagnosis and/or treatment.

Code Definition
0 Not Insured
1 Private Insurance / Managed Care
2 Medicaid
3 Medicare
4 Other Government
9 Insurance Status Unknown


Great Circle Distance

DD_category: 
PUF Data Item Name: 
CROWFLY
length: 
8
Description: 
The "great circle" distance in miles between the patient's residence and the hospital that reported the case.
Analytic Note: 

Residential latitude and longitude are based on the patient's zip code centroid or on the city if the zip code was not available. Hospital locations are based on the street address for the facility. The great circle distance is calculated between those two points. In some instances, the residential city is outside of the United States, so the upper bound of distance may be quite large. A distance of 0 can result when the patient lives in the same zip code where the facility is located.

The Haversine (half-versed-sine) formula is used to calculate the distance between the two locations. It was published by R W Sinnott in Sky and Telescope, 1984,though known about for much longer by navigators.

Charlson/Deyo Score

DD_category: 
PUF Data Item Name: 
CDCC_TOTAL_BEST
length: 
1
Allowable values: 
0 - 3
Description: 
Comorbid conditions as described by Charlson/Deyo (1992) [1] are mapped from as many as ten reported ICD-9-CM or ICD-10 secondary diagnosis codes. The Charlson/Deyo value is a weighted score derived from the sum of the scores for each of the comorbid conditions listed in the Charlson Comorbidity Score Mapping Table (source: http://mchp-appserv.cpe.umanitoba.ca/viewConcept.php?conceptID=109 ). The range for this value is between 0 and 25. Starting with the 2015 PUF released in the Fall of 2017, ICD-10 codes are incorporated into the score calculation for cases diagnosed in 2006-2015. Registries were able to submit ICD-10 codes starting in 2006. However, very few ICD-10 codes were submitted until 2015. The 2015 Charlson-Deyo Score is derived from the highest score that is calculated from using either the ICD-9 codes or the ICD-10 codes. The allowable values have also been extended to now include values up to 3 or more.</p>
Analytic Note: 

Because of the small proportion of cases with a Charlson Comorbidity score exceeding 3, the data have been truncated to 0, 1, 2, 3 (greater than or equal to 3). A score of 0 indicates "no comorbid conditions recorded", or none of the values shown below. Patients with a score of 0 could still have comorbidities if they are conditions that are not included in the mapping table below. Note that the patient's cancer is not directly reflected in the recorded score.

Two examples illustrating how the Charlson Score is summarized for the PUF data: If a patient had a myocardial infarction, diabetes, and renal disease, the cumulative score would be 4, and the value shown in the PUF would be 3. If a patient had severe liver disease, the value in the PUF would also be 3, since the Charlson Score of severe liver disease is 3.

Values reported in the PUF:

Code Definition
0 Total Charlson Deyo Score of 0
1 Total Charlson-Deyo score of 1
2 Total Charlson-Deyo Score of 2
3 Total Charlson –Deyo Score of 3 or more

Charlson Comorbidity Score Mapping Table:

Spanish Origin

DD_category: 
PUF Data Item Name: 
SPANISH_HISPANIC_ORIGIN
NAACCR Item #: 
190
length: 
1
Allowable values: 
0 - 7, 9
Description: 
Identifies persons of Spanish or Hispanic origin.
Registry Coding Instructions: 

Persons of Spanish or Hispanic origin may be of any race, but these categories are generally not used for Native Americans, Filipinos, or others who may have Spanish names. Code 0 (Non-Spanish; non-Hispanic) for Portuguese and Brazilian persons. If the patient has multiple tumors, all records should have the same code.

Race

DD_category: 
PUF Data Item Name: 
RACE
NAACCR Item #: 
160
length: 
2
Allowable values: 
01 - 08, 10-17, 20 - 22, 25 - 28, 30 - 32, 96 - 99
Description: 
Identifies the primary race of the person
Registry Coding Instructions: 

Race is analyzed with Spanish/Hispanic Origin (NAACCR Item #190). Both items must be recorded. All tumors for the same patient should have the same race code.

  • Codes 08-13 became effective with diagnoses on or after January 1, 1988.
  • Code 14 became effective with diagnoses on or after January 1, 1994.
  • Codes 15 was changed from 09 and split into 16 and 17 in 2010; converted cases are likely to appear as 15.
  • Codes 20-97 became effective with diagnoses on or after January 1, 1991. SEER participants in San Francisco, San Jose,Monterey, and Los Angeles are permitted to use codes 14 and 20-97 for cases diagnosed after January 1, 1987.

Note: Beginning in 2001 cancer registries recorded multiple race codes, as many as five. These additional race codes are infrequently reported and are not provided as part of this file.

Sex

DD_category: 
PUF Data Item Name: 
SEX
length: 
1
Allowable values: 
1 - 4, 9
Description: 
Identifies the sex of the patient.
Registry Coding Instructions: 

Record the patient's sex as indicated in the medical record.

Analytic Note: 

Due to low case counts, any sex other than male or female is suppressed in the PUF data.

Code Definition
1 Male
2 Female

Patient Age

DD_category: 
PUF Data Item Name: 
AGE
NAACCR Item #: 
2300
length: 
3
Allowable values: 
000 - 090, 999
text: 
Right Justified, Zero-filled
Description: 
Records the age of the patient at his or her last birthday before diagnosis.
Registry Coding Instructions: 

If the patient has multiple primaries, then the age at diagnosis may be different for subsequent primaries.

Analytic Note: 

In utero Date of Initial Diagnosis (NAACCR Item #390) was coded as equal to the Date of Birth (NAACCR Item #240) in the past. Beginning in 2009, assignment is to the pre-birth date on which the diagnosis occurs. Age at Diagnosis is assigned 000 for these cases.

For compliance with HIPAA privacy requirements, all patients age 90 or over at diagnosis are shown as 090.

Code Definition
000 Less than one year old, or diagnosed in utero
001-089 One to eighty nine years old
090 Ninety or older
999 Age at diagnosis unknown


Case Key

DD_category: 
PUF Data Item Name: 
PUF_CASE_ID
length: 
37
Description: 
Unique case identification number assigned to the case in the PUF.
Registry Coding Instructions: 

None.

NCDB System Code Assignments: 

NCDB assigned value that uniquely identifies each case included in the PUF. The value assigned to each case is selected at random, and the value assigned to each case will change with each issued PUF. The PUF Case IDs are not the same across cancer sites, and cases cannot be linked across cancer sites.

Note that the length of this key was expanded from 10 to 37 in January 2014.

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